Overcoming the Challenges Associated with Finding Data from a Newly Discovered Disease Area & In a Widely Under Researched Disease Area
Time: 3:30 pm
day: Conference Day One
Details:
- Identifying obstacles such as lack of established frameworks and data scarcity
- Developing novel data collection strategies, including patient-reported outcomes, natural history studies, and real-world evidence generation
- Building strategic partnerships with academic institutions, patient advocacy groups, and regulatory bodies to accelerate data gathering and validation
